Connect
← Return to Kevzara (sarilumab) to treat PMR
Discussion
Kevzara (sarilumab) to treat PMR
Polymyalgia Rheumatica (PMR) | Last Active: Aug 24 6:34am | Replies (162)Comment receiving replies
Yes, Methlttexate does have so many risks. They want me to take it instead of my pain medication and sorry I am not willing to give up what works just because of the Opiod Crises. Many people do well on Hydrocodone and I am one who does have any issues except DR’s all but for forcing me off. Doctors are trying to force patients off something onto something in my opinion could be more dangerous. No one can dictate you need to suffer. I’m my best advocate for sure.
Replies to "Yes, Methlttexate does have so many risks. They want me to take it instead of my..."
@nativeoregirl
Hello! I know what you mean about us suffering because of the “opioid crisis”!!
Doctors have already decreased my dose by one pill (from 4 to 3 of Percocet). I used to take hydrocodone, , but it was not working as well for me when I broke my kneecap and had to have surgery!
I already had PMR, so when the pain from my surgery stopped I still continued with the Percocet—-that’s when doctors were starting to force everyone off opioids
My body has adjusted to the lower dose. Sometimes I only take a half pill with a Tylenol 500 rapid release gelcap and this gives me some relief . I’m also under the care of pain management doctors and they are the ones who approved the half pill (as long as you are not taking a extended , long release tablet) my tablet is short acting , half a pill will last 4 to 6 hours.
Connect
I know of no Studies showing opioids are even an option for PMR (& are so addicting). Steroids are only known treatment. But Kevzara may be a game changer. Weaning slowly off steroids from 20 to 12.5 & will have 3rd injection on Monday. Still pain free , but unknown if a flare will happen as we wean off steroids. Crossing fingers!