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Complex endometrial hyperplasia with atypia

Gynecologic Cancers | Last Active: May 13, 2023 | Replies (29)

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@krisnkass

I am 35 and was diagnosed with complex endometrial hyperplasia. I have opted to have the hysterectomy as I have 3 wonderful children, my oldest is 15 and my youngest is 9. I’m very nervous. I was referred to an oncologist who I meet in two weeks. Does anyone have any advice what I should be asking and ensuring gets done prior to the hysterectomy?

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Replies to "I am 35 and was diagnosed with complex endometrial hyperplasia. I have opted to have the..."

I have just been diagnosed as well and feel your pain! I have an appointment with a Obgyn Gyno Oncologist on the 22. Did your doctor recommend you have the surgery right away? Do you have any idea how you got it?
My thoughts are with you and thank you for sharing!

@krisnkass I can understand your nervousness as I felt like that before I had a hysterectomy. My situation was different, though, as my biopsy done through a D & C had already shown endometrial cancer.

From what I understand about complex endometrial hyperplasia it raises the risk for uterine cancer but there are so many other factors to consider as you will read in this link from Cleveland Clinic (a reliable and valid source on the internet). There are questions you can ask the oncologist at the button of this website:

Endometrial Hyperplasia

-- https://my.clevelandclinic.org/health/diseases/16569-atypical-endometrial-hyperplasia

What questions might you ask? First I suggest that you write your questions in a notebook or on a pad a paper where you can take notes.

1) What will be removed during the hysterectomy? All of the reproductive organs (uterus, ovaries, fallopian tubes, and cervix)? If some will be removed why those organs and not others?

2) How likely is it that this is uterine cancer?

2) If you are not perimenopausal, will you refer me to a doctor to monitor and help me with menopausal symptoms?

3) When will I get the pathology results from the hysterectomy? How soon will these be available and will you discuss the results with me?

4) Are there any preparations I need to make before the hysterectomy? What should I eat or drink or not eat or drink before the surgery?

These are a few questions. Other members will provide more questions for you to ask.

Is the hysterectomy already scheduled? If so, when is it or will it be scheduled after you meet with the oncologist?