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DiscussionMAC: Just how well do nebs work, anyway?
MAC & Bronchiectasis | Last Active: Feb 7 5:44pm | Replies (88)Comment receiving replies
Replies to "Hi Sue Where’s did you receive help for MAC/MAI. Was it an infectious disease Dr ?"
Hello, and welcome to Mayo Connect. I hope you will find help by reading our many discussions, and asking questions about your own personal journey with MAC, which affects each of us differently.
Five years ago this month after a sharp-eyed radiologist saw something suspicious on an x-ray and sent me for a CT of my lungs. My "first stop" after diagnosis of "Bronchiectasis with possible MAI" was a pulmonologist, who did the testing to id both MAC and Pseudomonas. He treated me for over a year, getting the infections "under control" - but I still had positive cultures every 2 months, so I asked to see an Infectious disease doc, who changed up my meds.
The pulmo was competent, but apparently had an ego - when he saw that I had seen the ID doc, he "fired" me as his patient - even though I still have asthma and bronchiectasis. Fortunately, the ID doc referred me to a pulmo with whom he collaborates. The three of us are still a team on this journey even though I have been off the meds for over 3 years.
Who are you seeing now? Is your diagnosis recent?
Sue
So,