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← Return to Kevzara (sarilumab) to treat PMR
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Kevzara (sarilumab) to treat PMR
Polymyalgia Rheumatica (PMR) | Last Active: Apr 4 7:55pm | Replies (156)Comment receiving replies
Personally, I wouldn't take the chance on any new drug due to my PMR being a direct result of the Covid Booster, (last September 2022) which was too new in its infancy to know the dangers! Never again. Of course, that is just my opinion. I tolerate Prednisone very well and tapering from 15 to 12.5 did not even phase me except the fatigue continues. I feel 100% better getting a second opinion from a great Rheumatologist. I will be on Prednisone for a while, another 18 months if not forever. Important to note and share that my blood sugar has dropped almost one point since I started back on Prednisone in March 2023. SIide effects can increase A1-C levels dramatically, however, it improved mine. I went from a 6.1 down to a 5.4 level. Hasn't been that low in 3-5 years. So Prednisone is actually helping me in more ways than one. I wish you the best results possible on this journey. Everyone is different and presents differently. I get so much from everyone's posts so please do keep sharing with everyone! It certainly helps to know we don't have to go it alone! Deb
Replies to "Personally, I wouldn't take the chance on any new drug due to my PMR being a..."
Agree 100% and this drug is untested andb like playing Russian Rouletee with your body
I completely understand about not trying anything new and untested-- I got PMR after having Covid :(. However, the Kevzara is not "new" it's only just approved for PMR. It's been used successfully for RA patients. I'm about to start as Methotrexate isn't conducive to my medical history.
Thanks 🙏 for sharing. My joint pain stayed with 2nd Moderna vac shot! In Feb. 2021!!!
Although I test negative to COVID I have all pain and exhaustion symptoms! My long term arthritis is blamed!?!
Hope to get into Stanford U. Acute Covid clinic ASAP.
ApCodine works a bit on pain but I need help! PAlto docs seems mystified re treatment.
I think I’ll ask re Prednisone! My doc never mentions anything but the Tylenol meds!! 😢🥵🙏
Sadly, my blood sugar has climbed considerably since beginning Prednisone, but I’m about to be 71 and the newest ADA guidelines say that an a1c of 8 is fine for a senior. I don’t think mine will be that high anyhow.
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I developed PMR within 36hrs of 2nd Pfizer Vaccine. I have been on Prednisone for 2 plus yrs. Difficult weaning since I got to 10 mg from 20mg. On 7mg with mild symptoms but now have bilateral achilles tendonitis. I know steroids can possibly cause achilles tend. I don't want to try Methyltrexate due to liver effects. I get ur point about not trying anything new. Hope it goes in remission soon. Best of luck to you!