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Dercum’s Disease: Let's create a support group

Chronic Pain | Last Active: Nov 14 4:08pm | Replies (115)

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@karie608

Hi! I am awaiting a MRI to rule out Dercums disease. I found my first “limpoma” last year. It was a little tender but no bother. GP diagnosed. Starting in April I have been having constant fatigue, bloating, abdominal pain, nausea, lymphnodes swollen and more.. I find new “lipomas” everyday all over my abdomen. I lost count after 23. Some are round and firm and others are oval and almost chain like. I am swelling, and woke up with mild lymphedema in my arm today. I am really anxious about this diagnosis with how fast I have declined and little known about it. Do you have similar symptoms? Did your symptoms show up this quick and progress so fast? Also, any abnormal labs? I have high WBC (16) and my absolute lymphocytes have been running between (5:7-6.8)

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Replies to "Hi! I am awaiting a MRI to rule out Dercums disease. I found my first “limpoma”..."

Welcome @karie608, There is a post earlier in the discussion by @sll108 that references a website and also has a video that might be helpful for your questions - https://connect.mayoclinic.org/comment/821692/.

Here's the link to the website - https://www.fatdisorders.org/dercums

When is your MRI scheduled?