Connect
← Return to PMR with hand/wrist pain and swollen veins?
Discussion
PMR with hand/wrist pain and swollen veins?
Polymyalgia Rheumatica (PMR) | Last Active: Jul 3, 2023 | Replies (32)Comment receiving replies
As you say, we’re all unique in the ways PMR afflicts us. I have been off Prednisolone now for a month - after a 16 month taper from 15mg daily. But my case is unusual. Estimating degrees of pain is a matter of subjective impression and subject to the vagaries of memory but in my experience Pred has had little or no effect in moderating pain levels. The only apparent effect of cessation is elimination of symptoms induced by the drug. No signs of RA. Pain levels (which are manageable with exercise and occasional analgesics) are much the same as they were at the beginning. (Bearable - not agonising) But I am better now at managing them. As I’ve remarked elsewhere, you start to wonder if it’s PMR you’ve got, if Pred doesn’t help - though all the other symptoms match.
Replies to "As you say, we’re all unique in the ways PMR afflicts us. I have been off..."
Connect
My experience is very similar. I was diagnosed with PM R in 2016. On prednisone for 18 months. Then total remission until about 2 months ago. Pain in shoulder, back, sometimes hips, and hands. Hands tingle in the morning and at night. Markers were high first round but normal this time. Prednisone helped dramatically first time, this time only moderately. I’m not taking it now. I have developed large painful nodules on the knuckles below the index finger. Not sure what to do next. Starting PT next week. Prayers for everyone.