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Anyone have Pancreatic Acinar Cell Carcinoma?

Neuroendocrine Tumors (NETs) | Last Active: May 6 10:33pm | Replies (14)
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@thawk32

I’m looking to anyone who has been diagnosed with Acinar Pancreatic cancer. It a rare form of Pancreatic cancer so I’m having no luck with contacting with someone with this type of PC .
Thanks in advance and god bless all you PC warriors. 🙏🏻❤️🙏🏻

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Replies to "I’m looking to anyone who has been diagnosed with Acinar Pancreatic cancer. It a rare form..."
jenray | @jenray | May 13, 2023

Hi,

I don't have any direct info, but I remembered reading something about it on reddit and I found it again. There are at least two other people in the discussion, plus a mention of a Facebook group. Here's the link:

https://www.reddit.com/r/pancreaticcancer/comments/12tc85c/so_this_is_a_bit_weird/

And here's another discussion from reddit:

https://www.reddit.com/r/pancreaticcancer/comments/usc6p7/acinar_cell_carcinoma/

And I *think* this is the link to the Facebook group:

https://www.facebook.com/groups/218900321971851

Anyway, good luck! Wishing you a happy outcome and that you find a good community of support.

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Colleen Young, Connect Director | @colleenyoung | May 24, 2023

@thawk32 I'm tagging @stageivsurvivor who also has pancreatic acinar cell carcinoma (PACC) and wrote more here: https://connect.mayoclinic.org/comment/726298/

How are you doing?

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