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Anyone with invasive lobular cancer stage 4 that has metastasized?
Breast Cancer | Last Active: Jun 8, 2023 | Replies (25)Comment receiving replies
I was diagnosed with multifocal sclerotic bone lesions in January 2023. I had breast biopsies, right pos for LCIS. Lymph node in right axilla for carcinoma likely breast. I had FDG PET all negative except for lymph node. Iliac bone biopsy pos for very rare atypical cells GATA pos ER neg. Had FES PET negative except for lymph node and biopsy site. Bone scan negative except for biopsy site. Just had second biopsy (same iliac bone) pos for carcinoma. So 4 months later I'm told I cannot have surgery because of bone mets. I just started letrozole and I'm told I can have targeted chemo, but this is a very slow growing cancer and chemo works on cell cycle of rapidly reproducing cells. Has anyone had mastectomy for lobular carcinoma with bone mets to know if it is a viable treatment alternative?
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I had invasive lobular carcinoma inMarch 2009 at 5 o’clock on right breast. No lymph node involvement. Had lumpectomy and 6 weeks radiation. Took aromasin for 5 years. Cancer came back and first noticed something January of 2022. It was June 2022 diagnosed as Stage 4 invasive lobular carcinoma of right breast metastasized to the left lymph nodes. (Right lymph nodes seemed blocked from previous radiation) Took Ibrance and anastrazole until February 2023. 6/2022 bone scan was neg. 11/2022 FDG PET/CT was neg except for right breast. Had bilateral mastectomy 2/28/2023. Removed 31 lymph nodes/23 positive for carcinoma. FES PET/CT scan April 26 indicated multiple sclerotic bone lesions significantly greater than baseline of 1.5 ? FDG PET/CT shows lesions. (5/8/23) Bone scan 5/12 2023. MRI of brain on 5/11. MRI of pelvis scheduled 5/14, MRI of cervical and lumbar spine scheduled 5/16. Need 6 weeks radiation and probably Kisqali and Fulvestrant as treatments. I am in Spokane. Where are you being treated? Did you find the sclerotic bone lesions before the lobular breast cancer?