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DiscussionAromatase Inhibitors: Did you decide to go on them or not?
Breast Cancer | Last Active: May 12, 2023 | Replies (1190)Comment receiving replies
Replies to "I rely on breastcancer.org. for a lot of my info."
Breastcancer.org incorrectly stated that the OncotypeDX test is used to predict whether radiation would be a benefit when, in fact, radiation is a variable that is not in any way considered or evaluated in the OncotypeDX model. The OncotypeDX is used to help oncologists and their patients decide whether chemo, or rather the risk and reward profile of chemo, would be of benefit. I have written breast cancer.org on several on occasions and as far as I know they still haven't corrected their text.
We have to make such serious decisions when we face breast cancer and few of us have the cancer-specifuc experience or education to do so. Yet alone do so dfairly quickly, That is why I think it's critical to get at least a second or third opinion with a with an oncologist. And, as with anything else that one reads online, double or triple check things because there are a lot of inaccuracies out there. And there's a lot of information that is simply no longer considered valid. The problem with online content is that there's relatively little original material and, for every bit of original material, there are hundreds or more websites immediately capturing that and adding it to their website.
So misinformation propagates exponentially. I think that there's no rest for the weary when it comes to due diligence on the part of the patient too try to become as well informed as possible.