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Inclusion Body Myositis: I'd like to talk with others
Autoimmune Diseases | Last Active: Oct 20, 2023 | Replies (97)Comment receiving replies
Welcome @billmixon99, Hoping you find some answers soon for your diagnosis. It's frustrating having gone to so many doctor and not having any answers. You mentioned having very high creatinine levels for years. Here's some information that might be helpful in your search for answers.
--- What to know about high creatinine levels: https://www.medicalnewstoday.com/articles/when-to-worry-about-creatinine-levels.
Have any of your doctors discussed any concerns for the high creatinine levels with you?
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Years ago in my 20sabd 30s I gave blood to Red Cross got a 5 gallon pin only to be sent a letter stating my creatine levels were high need to get checked and I did. Negative on all items but couldn’t give blood anymore. Creatine we’re always high in those years. Planning n having a thigh biopsy to see if I has e IBM Excessive fatigue and muscle tenderness loss of strength I was told it was simulated to leukemia and muscular distrophy. .. ? Looking for someone who know about IBM