← Return to Husband had Whipple surgery and chemo: He's uncomfortable

Discussion
Comment receiving replies
@icelander19

I was on oxaliplatin too and was supposed to get 12 doses. We had to quit at 11 and still wonder if we should have stopped sooner. Might not have such severe neuropathy. I have numbness that is in my feet and up my legs. Causes some balance problems. Was also on irinotecan and 5FU and folfirinox. I am trying to get some answers as to why after all this time, I get such pressure in my stomach area after eating. I try to keep the meals smaller - don't always succeed.

Jump to this post


Replies to "I was on oxaliplatin too and was supposed to get 12 doses. We had to quit..."

icelander, a note on Folfirinox (which I'm on) from the National Cancer Institute:

FOLFIRINOX combination:
FOL = Leucovorin Calcium (Folinic Acid)
F = Fluorouracil (5FU)
IRIN = Irinotecan Hydrochloride
OX = Oxaliplatin= oxalipatin

I'm sharing this bc it's important for us to use accurate terms as we advocate for ourselves. (It's not possible to be "on irinotecan and 5FU and folfirinox" bc Folfirinox comprises irinotecan and 5FU [fluorouracil].)

Best wishes.