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Tarlov Cyst on the spine: Any advice?

Spine Health | Last Active: Oct 21 8:17am | Replies (173)

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@kgrainger

Thank you, I have had so much happen in the last two years with my health and I am getting no where. My doctor sent my records to Mayo with a result of the waiting list is at capacity. I haven’t been able to work for almost 5 months now. I feel so defeated most days

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Replies to "Thank you, I have had so much happen in the last two years with my health..."

Mayo Clinic does not have a doctor that specializes in Tarlov Cysts. Definitely don't listen to any surgeon that tells you that the Tarlov cysts are not the cause of your symptoms. If that is what you're told then it's time to move on. Definitely don't schedule any more procedures and don't give them any more of your money! There are only 3 doctors in the U.S. that do. I went to TX to see Dr. Frank Feigenbaum and he performed my surgery. I highly suggest sending your MRI discs in and scheduling a consultation with him. If insurance says they won't cover it like mine did tell there is no provider in their system that specializes in Tarlov cysts. Your primary care provider can request that you see Dr. Feigenbaum. Please don't wait on this. I was stuck for many years and I have some serious issues now! You will also find a bunch of information and support at http://www.tarlovcystfoundation.org I started crying when I started reading on that site because every single one of my symptoms that the doctors could not find the cause of for 15 years was finally validated!! You will also find priceless information and symptom management at http://www.arachnoiditishope.com It's one of the best sites I've been to. It's not just for arachnoiditis, which you probably have after all those aspirations and other procedures, but it also links other conditions like Tarlov cysts to other conditions. Please, anyone that sees this, go to these sites!!!