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Prednisone tapering is challenging. What does remission feel like?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)Comment receiving replies
My rheumatologist told me I may never regain any adrenal function I guess due to my age, 77. I would love to have it back. I feel much like you do but with very bright facial flushing and I feel very hot most of the time, like my skin is close to a fire. I did taper slowly from 15 mg, now only down to 12 or 13 mg a day after two and a half years. Carrying some prednisone with you is a good idea in case of crisis.
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Queenie, I'm 76 and happy to report that my adrenals seem to have remembered what they are supposed to do. It has taken 19 months of slow titration and I am down to 1/2 mg of Prednisone a day with plans to drop it entirely in a week. Don't give up hope--I suddenly realized that at 1 mg I was feeling energetic and well again, and my doctor just told me that if you feel that way and you are taking less than 5 mg a day, it means that your adrenals are working again!