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Long standing symptoms and nothing on CT scan: Does it happen often?
Pancreatic Cancer | Last Active: 2 days ago | Replies (43)Comment receiving replies
Your story is a difficult one. The EUS seems like it is the next step. Best of luck in getting answers. If you don't have pancreatic cancer, hope that you will be able to get a diagnosis of the cause of the symptoms and treatment to make you feel better. As a pancreatic cancer patient. my intestinal symptoms have been a major issue in quality of life. Pancreatic insufficiency is the cause, it has taken me a while to adjust the dosing of the pancreatic enzymes. It is difficult to not be able to go out as much because of the intestinal symptoms. I don't like to eat away from home and need to be conscious of the location of the bathrooms when I am out in public. This has become my new normal. I continue to work on the issue and hope that I will at least be able to go out in public places more easily.
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Have you tried the pancrealipase dosing calculator at https://digestthis.ca
It eliminates a lot of the guess work. I can relate to always being cognizant of where a restroom was as I was never prescribed Creon for several years.The GI issues were resolved using Creon and cutting out most fats like no more cream soups, not using butter on or cooking with it. Everything firmed up and no more sudden urgency. Quality of life significantly improved between using Creon, optimizing dose and being careful with diet. Each pancrealipase differs due to differences in how the enzymes are processed in making a particular brand. If after optimizing and still not getting the desired results, ask the dietitian or your prescriber to evaluate one of the other brands (Zenpep, Viokace, Pertzye and Pancreaze.
I know of patients who unsuspectingly had an underlying co-morbidity. One developed lactose intolerance and the other had celiac disease. Other potential co-morbidities can be Crohn’s, Ulcerative colitis, IBD/IBS as examples.