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Any difficulty in diagnosis of PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2023 | Replies (51)

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@janettec

I was initially diagnosed with PMR from my bloodwork alone and symptoms that were around my hips and lower back ... I was hobbling around but not complaining. That was in November 2021. I am getting worse, blood work declining, but my bone density is good despite 20 - 25 mg a day of Prednisone for 16 months ... I am also avoiding diabetic diagnosis despite putting on 30 lbs since taking Pred. These days the doctors (and I seem to have 4) simply don't know what I have. That was very unsettling to start with ... especially for my husband. The biggest issue for me is that my lungs don't work like they used to ... and I dont know if this is Pred, covid vaccines, or just me. As the breathing issue came on like a train going full belt, I don't think it was my body in rapid decline and the xrays and cat scans show no cause. I'm thinking that perhaps all this is Covid vaccine related ... and yes I would take the Covid vaccines again as the alternative could have been deadly. I find this site helpful ... someone to talk to ... and lots of interesting informaton ... and one is certainly not alone. PMR seems to have many faces? I don't ever want to be bitter. Good luck and get well soon.

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Replies to "I was initially diagnosed with PMR from my bloodwork alone and symptoms that were around my..."

required:Call 999 or go to A&E now if:
you have severe chest or stomach pain – these can be signs of a hole in your stomach or gut
you have difficulty breathing, or asthma symptoms that become worse
you get a severe headache, a high temperature or stiff neck, and a dislike of bright lights – these can be signs or inflammation of the protective membranes that surround the brain and spinal cord (meninges)
you have blurred vision or you see or hear things that are not real (hallucination
This is the national healths Servicr in the uk,s website side effectsl warnings. For Ibrofen. As you will see the reference to difficulty btrsyjing symptons so please please just seek advice.