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4 treatment options from my doctor, which one should I start with?

Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (64)
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@elm60

Hi jul
I am sorry to hear you are going through all this. I don’t have the same NET’s as you but it sounds like you are seeing a NET Oncologist ? What is he/she suggesting? I would suggest a second, or even a third opinion. Mayo Clinic has three locations: Jacksonville, FL, Rochester MN, and Phoenix and Scottsdale , AZ. All locations have great NET Specialists as well. Please let us know what your doctor is suggesting but getting a few opinions can help you make your decision easier!

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Replies to "Hi jul I am sorry to hear you are going through all this. I don’t have..."
kim1965 | @kim1965 | May 10, 2023

We can't suggest a treatment, your NET Specialist is source for making the best decision. I can share that my wife NET Multi-disciplinary team started us on CAP/TEM, along with Lanreotide injections for 9 months with achieved great results, the CAP/TEM was tolerated as it was in the pill form, so not as many side effects. But each form of NET's has a different treatment plan, and I would discuss with your NET Specialist what is best in your case.

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