← Return to Prednisone tapering is challenging. What does remission feel like?

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@priscillat

I too have been diagnosed with adrenal insufficiency. I’m at 5.5 mg; I was hoping to tough it out until my adrenal glands start working again. I have abdominal pain and body aches some days. Most days I just feel weak and tired, with bouts of nausea. I see my rheumatologist next week (she diagnosed me a month ago). My plan is to ask for another cortisol test; then in a few months, another ACTH test. If both aware improving, I’ll hang in there. If not, then I’ll ask for a referral to an endocrinologist. My understanding is the treatment for adrenal insufficiency is more prednisone or hydrocortisone - but I’d like to get my OWN adrenal function back. In the meantime, I carry 10mg prednisone in my purse in case of adrenal crisis; and I wear a medical alert bracelet.

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Replies to "I too have been diagnosed with adrenal insufficiency. I’m at 5.5 mg; I was hoping to..."

My rheumatologist told me I may never regain any adrenal function I guess due to my age, 77. I would love to have it back. I feel much like you do but with very bright facial flushing and I feel very hot most of the time, like my skin is close to a fire. I did taper slowly from 15 mg, now only down to 12 or 13 mg a day after two and a half years. Carrying some prednisone with you is a good idea in case of crisis.