Kim, pulse steroids means I take two large doses a week rather than small doses every day. We are trying to combine IG infusion with limited steroids to lessen the number of infusions and keep my glucose under control. I've gone from four days of infusion per month to two days! So far so good. The change helped influence my insurance to keep paying for the Immunoglobulin. I don't know if this plan of care is common. If I did not have the diabetes then perhaps I could be treated with more steroids. Does covid or the vaccine cause or exacerbate neurological disease? I don't know. I do know from my own experience that prior to three vaccines, booster and being close and personal with covid patients in my hospitals for over three years my underlying preexisting issues exploded into full blown CIDP, idiopathic pulmonary fibrosis and diabetes. It seems to me that covid and/or the vaccine latched on to the most vulnerable areas in my body and took over. My neurologists have said I likely had asymptomatic covid. I do suffer "long hauler" symptoms now. Both have said they are seeing more and more patients like me- in healthcare who were essential providers, with neuropathies. There is at least one recently published paper that cites a case of covid vaccine caused CIDP. (I'll post a link on another post ) It is well documented that in the 70's the H1N1 flu vaccine caused Guillaume Barre- the non chronic form of CIDP. my last vaccine was a combined flu/covid. However, from my reading and understanding, it seems unlikely that the RNA Covid vaccine or the flu vaccine caused my illnesses. All that said, who knows and does it really matter? There is no recourse for us with anyone regarding the vaccine or Covid as far as I am aware. The powers that be locked that down tight. We are on our own. I don't mean to be negative- just realistic. So, did your preexisting CIDP flare after the vaccine? Mabey. Did you get exposed to the virus? Mabey. My plan of care and resources would not change if it proved to be true for me. I have a colleague who worked with me in the same settings, same job, same time, similar preexisting issues, age, etc. I mean same, same. He has CIDP, liver cerrossis and diabetes. Not a coincidence, I think, and he's dying. Perhaps in the years to come as more cases present and more facts are uncovered we will have an real answer to our questions. In the mean time, know that you are not alone in your struggle and I appreciate you for sharing your story. The opportunity to express my own struggle is welcome and helpful to me. I hope that in some way I can be supportive of others as we live with our illness. I am very interested to know how your CIDP developed since 2009 and about your care. CIDP is such a rare disease. If we who have it can share our experiences perhaps we can make better sense of what has happened in our lives because of it. Please comment or message if you like.