1131 radioactive iodine pill: How did you manage it?

Posted by lilyann @lilyann, May 7, 2023

i would like to hear from anyone who has had the radioactive iodine pill and how they endured it. just the thought bothers me. my treatment has been put off for another week due to low TSH, already been on the low iodine diet for 16th days, and then reading about complications of a low iodine diet. then i informed my endocrinologist that the hospital said i should be on the diet for 4 weeks instead of 2. so now i don't think she likes the fact that i had said that and when i got this last blood test for TSH it was high, so i was wondering how many more people are in the same situation. thank you for any information you can give me and wishing all a happy mother's day.

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I always heard two weeks for the low iodine diet.
Happy Mothers day to you to!!

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My TSH was too low to have radioactive iodine pill initially. So, I had to wait until the number was high enough to take pill. I was on the low iodine diet for 3 weeks before pill and 1 week while taking pill. No trouble whatsoever. Good luck!

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@lilyann, how are you doing?

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Doctor told me that I have papillary thyroid cancer and I’m male at age 34. What would be my next steps? Anyone gone through this? I’m from Canada

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@colleenyoung

@lilyann, how are you doing?

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hi colleen, starting to feel just a tiny bit better. i had nausea, headaches, just not up to par and ever so tired. really couldn't wait to eat those sour lemon candies, now, i can't stand them. its like they make me sick. so my throat did swell up from ear to ear and with pain so my dr. rx'd, methylpredisolone. so tomorrow i go to get the full body scan to see if the radioactive iodine pills got into all the leftover cancer cells. i sure hope so because i really do not want to do this all over again. at first diagnosis, it was papillary and then after the first surgery then i was told it was the aggressive kind, i know on here there was another person that said that is what they had and i mentioned that i had never heard of that, well, i sure have now along with the tall cell. then the dr. told my endocrinologist that my lost of voice is permanent, which he did not tell me after i seen him after the second surgery. i wonder why he held back telling me that. my heart is so broke for all that have wrote on mayo and all that they went through. they are so brave and strong. prayers for each and everyone.

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xyzck88. yes, that was what i was told after my ultrasound, then i had the biopsy. i had a voice before this and after the biopsy, i was hoarse, i want to blame the biopsy but when i told the dr. he said no as i had it way before then. well, maybe so, i don't have a diploma on the wall. all i know is my speaking voice was ok before the biopsy. so then onto the endocrinologist, who then sent me to the ENT and that is where i found out that my right vocal chord was paralyzed. so at the first surgery consultation, he said it would be 2 surgeries, and that was to save that right vocal chord. well, it was full of cancer so he had to take it out, it was a 2 1/2 hr. surgery. out of 19 lymph nodes, 11 had the cancer. i still have that "big" dog collar feeling and that was since jan. 31st, 2023. so much cancer invasion and i guess that is why that feeling in my throat, at times it feels like someone choking me. then too after that biopsy. i had that same feeling which i found strange, however it did let up some after awhile. wish you the best and i believe your being young and caught this early. your situation should have better results. take care and keep in touch.

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I just had the thyroid uptake and scan this week.
The radioactive capsule was easily taken with water at 9am on Monday.
Returned at 9am on Tuesday for the uptake and scan. It all took about an hour.
I got results back on Wednesday morning and uptake is at 40.1 %.
The scans showed no thyroid enlargement in either lobe and no hot or cold nodules.
I have not yet discussed those results with my doctor. To me, it would seem that the uptake is about 5% above a normal high of 35%. I have no idea what this means other than overactive thyroid which I already knew.
Prior to these tests this week my THS was seen at a very low of < 0.01 .
T3 is a very high 9.9 and T4 is somewhat higher than normal at 2.1 .
I have no hyperthyroidism symptoms that I am aware and nothing that would indicate Graves disease. My eye doctor says nothing to indicate thyroid eye disease or Graves.
So that's my thyroid story before any further consultation with my doctor.
I was already very diet conscious because of colon resection 12 months ago. I am definitely not consuming much iodine.
I have seen where some believe that the second Covid-19 vaccine can be a cause of thyroid disruptions. I am not a vaccine conspirator, so I have no idea.
Any comments or ideas are appreciated !
Paul

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Hello I’m Sandra how did it go yet?? I still have to do mine as well. They’ve been calling to schedule but I guess I’m quite scared. My thyroid was removed and that freaked me out the aftermath of it was and has been horrible I’m always so nervous or full of anxiety all the time now. I don’t want to go through that all over again is it anything like that may I ask. I keep ignoring the call. I have children and grandchildren around the house and I’ll have to isolation here at home I’m scared if that too.

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