← Return to GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

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@johnbishop

Welcome @grammy82, I'm happy to hear you found Connect also and it's great to hear your treatment saved your eyesight. I'm not sure exactly when Connect was started but I think it may have been 2011. I was happy to have found it in 2016 when searching for neuropathy information. The PMR and GCA discussions came in handy during my second flare of PMR in 2016 also.

Health Unlocked also has a wealth of information and was quite helpful for me when I was tapering off of prednisone. I never developed GCA but was always watching for possible symptoms.

We recently updated the search function on Connect so if you are looking for specific topics or trying to find questions, give it a try at the top of every Connect page. There is also a discussion search function on the Connect home page where you can click the search just above the list of discussions highlighted and search just for discussions containing a keyword.

@tsc and others might have some suggestions or tips for the fatigue and stamina issues associated with treatments for GCA. Is the fatigue or stamina the main side effects you have now?

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Replies to "Welcome @grammy82, I'm happy to hear you found Connect also and it's great to hear your..."

Thank you so very much, John; I really appreciate that information and your note. I don't spend much time looking over my shoulder, but sadly did not find you and this group in 2019 when I seemed surrounded by people that never heard of GCA. I'm just glad I'm here...I know how bleak it can look when you are in the dark....but people do get well, and it is so important to know that.💞