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Stage 1B Adenocarcenoma NSCLC: Odds of recurrence?
Lung Cancer | Last Active: May 26, 2023 | Replies (26)Comment receiving replies
Hi. Yes, biomarkers were tested. My tumor came back EGFR positive. It also came back PDL1 positive, but it’s not advanced enough to treat it for that.
The EGFR “treatment” is a tyrosine kinase inhibitor. It’s not chemo or immune therapy apparently. The inhibitor that was mentioned is not covered on my Medicare Part D (prescription plan). And its cost prohibitive. Not sure what my other options might be.
I did have symptoms. Pain in my upper right shoulder behind the shoulder blade. Had a raspy voice. The spot was noticed in a routine X-ray in January. Then CT scan, PET/CT scan, then biopsy confirmed it.
I have an appointment with a Mayo oncologist in May 15.
Replies to "Hi. Yes, biomarkers were tested. My tumor came back EGFR positive. It also came back PDL1..."
It sounds unnerving, but I wish you the best on your journey. Thanks for sharing. I have a followup for nodules/ground glass over the winter. Have been in the "watchful" mode.
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That's great news that they found this at an early stage! We have many other EGFR members here on Connect. Some are very knowledgeable. I have ALK positive cancer, so a similar mutation type driver and I've been on my TKI for 3 years now.
At your appointment next week, be sure to ask about assistance with the cost of the meds. Sometimes the drug manufacturers have programs to help reduce the cost for those without insurance coverage. These high-tech meds are so very expensive.