Just diagnosed: Metastatic NETs. Treatment?

@helloitsme, I am in the process of trying to schedule a scan (Gallium 68) as my last one was 14 months ago. It’s a bit stressful as it’s been so long but I’m just trying to focus on the fact I feel good (an hour at the gym today, 3 miles on the treadmill yesterday). Fingers crossed on this.
As for moving doctors, I mailed a letter to my former doctor today saying I was notifying him I would no longer be seeking treatment there, thanked him for his help and support over the last 4 years, and that I know he and the staff have very challenging jobs. Short and to the point and I felt better for having done it. No reason to go into my grievances, but just to move on.
So, I know there’s likely going to be a next step in my treatment, just don’t know yet what it’ll be. It’ll be a new “challenge”. But I viewed hitting 3 miles on the treadmill a challenge, and I’ve met it. Hum, guess I need to set a new challenge there.
Keep us informed please.

Here is my diet which covers almost every day of the year.

Breakfast---a cup of coffee (no sugar) and two or three toasted bagels with whipped cream cheese on them. Sometimes I now only have coffee.
Generally little eating after that except perhaps a can of sardines in olive oil at about 1:00 p.m. Occasionally will substitute some unsalted peanuts.
Outside of the cup of morning coffee, I drink nothing else except sips of water frequently through the day. I never drink a whole glass of water as it seems to trigger diarrhea.
Evening meal: a large and I do mean large salad of cucumbers, grape tomatoes, apple and a colored pepper. I put vinegar on my salad in large amounts. I have a large helping of a meal that has whole grain pasta, Classico Cheese Alfredo sauce, sliced mushrooms and a third of a can of salmon or a similar quantity of chicken. With the chicken being the meat we add carrots and celery. We make a large pot of each either with the salmon or the chicken and I eat each three days in a row. in other words we alternate the base meat every three days. I finish with a serving of either cauliflower, broccoli or Brussel sprouts. I will later in the evening eat a few peanuts.

I take four vitamins--a Centrum silver, 4000 IUs of D3, 250mcg of B12 and 325mg of Ferrous Sulfate.

Not a lot of calories for sure but I function very well gardening walking about three miles a day with my dogs. I will nap for an hour and a half in the afternoon. my body has adjusted to this regimen. I eat no candy or sweets of any kind. I absolutely don't ever have a soft drink or fruit juice or milk despite my other dairy. I eat no processed foods. I occasionally will eat other seafoods as shrimp.
This may sound very dull but fortunately for me I have never been that big on sweets although I did used to love when much younger a Coke and a Hershey's chocolate bar. What i have learned is the body adjusts and after a while the thought of some of the "bad " things one used to eat are totally unappealing.
And I do get an octreotide injection every four weeks.
There is no way of knowing which of these things is most effective but I do believe strongly in few calories, plant based diet and seafood. Oh and I rarely have any alcohol. In the last five months I have had one glass of wine (wife's birthday), one glass of champagne (New Year's) and a small margarita (our anniversary). That is it. God bless you and help you. Oh, one last thing--I have worked exceedingly hard to not let anything stress me, even this situation. I have learned to roll through life now as if I am floating on a raft down a calm river, despite this health issue. I think letting oneself get stressed hurts our condition.

Here is my diet which covers almost every day of the year.

Breakfast---a cup of coffee (no sugar) and two or three toasted bagels with whipped cream cheese on them. Sometimes I now only have coffee.
Generally little eating after that except perhaps a can of sardines in olive oil at about 1:00 p.m. Occasionally will substitute some unsalted peanuts.
Outside of the cup of morning coffee, I drink nothing else except sips of water frequently through the day. I never drink a whole glass of water as it seems to trigger diarrhea.
Evening meal: a large and I do mean large salad of cucumbers, grape tomatoes, apple and a colored pepper. I put vinegar on my salad in large amounts. I have a large helping of a meal that has whole grain pasta, Classico Cheese Alfredo sauce, sliced mushrooms and a third of a can of salmon or a similar quantity of chicken. With the chicken being the meat we add carrots and celery. We make a large pot of each either with the salmon or the chicken and I eat each three days in a row. in other words we alternate the base meat every three days. I finish with a serving of either cauliflower, broccoli or Brussel sprouts. I will later in the evening eat a few peanuts.

I take four vitamins--a Centrum silver, 4000 IUs of D3, 250mcg of B12 and 325mg of Ferrous Sulfate.

Not a lot of calories for sure but I function very well gardening walking about three miles a day with my dogs. I will nap for an hour and a half in the afternoon. my body has adjusted to this regimen. I eat no candy or sweets of any kind. I absolutely don't ever have a soft drink or fruit juice or milk despite my other dairy. I eat no processed foods. I occasionally will eat other seafoods as shrimp.
This may sound very dull but fortunately for me I have never been that big on sweets although I did used to love when much younger a Coke and a Hershey's chocolate bar. What i have learned is the body adjusts and after a while the thought of some of the "bad " things one used to eat are totally unappealing.
And I do get an octreotide injection every four weeks.
There is no way of knowing which of these things is most effective but I do believe strongly in few calories, plant based diet and seafood. Oh and I rarely have any alcohol. In the last five months I have had one glass of wine (wife's birthday), one glass of champagne (New Year's) and a small margarita (our anniversary). That is it. God bless you and help you. Oh, one last thing--I have worked exceedingly hard to not let anything stress me, even this situation. I have learned to roll through life now as if I am floating on a raft down a calm river, despite this health issue. I think letting oneself get stressed hurts our condition.

@helloitsme I am sooo happy that you get to visit with Dr. Sonbol on the 25th. If you have any questions prior to your appointment, please ask. Do you have any other appointments while at Mayo?

Thank you. I’ve heard so many good things about Dr Sonbol and I’m feeling really comfortable with my decision to go to the Mayo Clinic. Yes, I have an MRI scheduled on the day before my appointment with Dr Sonbol. He ordered it to be able to see exactly what is going on in my liver.

Thank you. I’ve heard so many good things about Dr Sonbol and I’m feeling really comfortable with my decision to go to the Mayo Clinic. Yes, I have an MRI scheduled on the day before my appointment with Dr Sonbol. He ordered it to be able to see exactly what is going on in my liver.

Thank you. I’ve heard so many good things about Dr Sonbol and I’m feeling really comfortable with my decision to go to the Mayo Clinic. Yes, I have an MRI scheduled on the day before my appointment with Dr Sonbol. He ordered it to be able to see exactly what is going on in my liver.

Looking forward to hearing about your appointment, @helloiItsme. I'm sure you will have a great experience at Mayo.
Will you keep posting updates?