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Prednisone tapering is challenging. What does remission feel like?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)Comment receiving replies
My rheumatologist just diagnosed me -with adrenal insufficiency based on my symptoms. He referred me to an endocrinologist for testing and treatment. So we will see what she says but I feel awful. After 2 and 1/2 years on prednisone I am down to 12mg one day and 13 mg the next, etc. I thought you did not get this until you are below 10 or 7 mg? I am 76 years old. Anyone else experience this?
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I too have been diagnosed with adrenal insufficiency. I’m at 5.5 mg; I was hoping to tough it out until my adrenal glands start working again. I have abdominal pain and body aches some days. Most days I just feel weak and tired, with bouts of nausea. I see my rheumatologist next week (she diagnosed me a month ago). My plan is to ask for another cortisol test; then in a few months, another ACTH test. If both aware improving, I’ll hang in there. If not, then I’ll ask for a referral to an endocrinologist. My understanding is the treatment for adrenal insufficiency is more prednisone or hydrocortisone - but I’d like to get my OWN adrenal function back. In the meantime, I carry 10mg prednisone in my purse in case of adrenal crisis; and I wear a medical alert bracelet.