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DiscussionJust diagnosed: Metastatic NETs. Treatment?
Neuroendocrine Tumors (NETs) | Last Active: May 13, 2023 | Replies (53)Comment receiving replies
Replies to "@patrick031621 - I have similar conditions - surgery to remove huge pancreatic NET, metastastized to liver...."
Here is my diet which covers almost every day of the year.
Breakfast---a cup of coffee (no sugar) and two or three toasted bagels with whipped cream cheese on them. Sometimes I now only have coffee.
Generally little eating after that except perhaps a can of sardines in olive oil at about 1:00 p.m. Occasionally will substitute some unsalted peanuts.
Outside of the cup of morning coffee, I drink nothing else except sips of water frequently through the day. I never drink a whole glass of water as it seems to trigger diarrhea.
Evening meal: a large and I do mean large salad of cucumbers, grape tomatoes, apple and a colored pepper. I put vinegar on my salad in large amounts. I have a large helping of a meal that has whole grain pasta, Classico Cheese Alfredo sauce, sliced mushrooms and a third of a can of salmon or a similar quantity of chicken. With the chicken being the meat we add carrots and celery. We make a large pot of each either with the salmon or the chicken and I eat each three days in a row. in other words we alternate the base meat every three days. I finish with a serving of either cauliflower, broccoli or Brussel sprouts. I will later in the evening eat a few peanuts.
I take four vitamins--a Centrum silver, 4000 IUs of D3, 250mcg of B12 and 325mg of Ferrous Sulfate.
Not a lot of calories for sure but I function very well gardening walking about three miles a day with my dogs. I will nap for an hour and a half in the afternoon. my body has adjusted to this regimen. I eat no candy or sweets of any kind. I absolutely don't ever have a soft drink or fruit juice or milk despite my other dairy. I eat no processed foods. I occasionally will eat other seafoods as shrimp.
This may sound very dull but fortunately for me I have never been that big on sweets although I did used to love when much younger a Coke and a Hershey's chocolate bar. What i have learned is the body adjusts and after a while the thought of some of the "bad " things one used to eat are totally unappealing.
And I do get an octreotide injection every four weeks.
There is no way of knowing which of these things is most effective but I do believe strongly in few calories, plant based diet and seafood. Oh and I rarely have any alcohol. In the last five months I have had one glass of wine (wife's birthday), one glass of champagne (New Year's) and a small margarita (our anniversary). That is it. God bless you and help you. Oh, one last thing--I have worked exceedingly hard to not let anything stress me, even this situation. I have learned to roll through life now as if I am floating on a raft down a calm river, despite this health issue. I think letting oneself get stressed hurts our condition.