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Severe scoliosis

Spine Health | Last Active: Feb 1 11:39am | Replies (20)

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@mlopez01

Hi Denise,

I recently had spine fusion for my scoliosis. My surgery was done over two days as my curves were larger than most and I also needed a vertebrae removed. Make sure you find a doctor you feel comfortable with. If you go to Mayo, they do a really good job matching your case with the best doctor. I'm currently in week 6 post-op. The first month is not fun, but as my doctor told me if I didn't get surgery It would definitely shorten my life span. This was because it affects the location and function of the other organs. Start with finding a good surgeon and discuss the pros and cons. It can be scary. You'd be crazy if you weren't a bit scared. If you do get surgery, make sure you can be in a place where you can have help with your daily needs. Definitely want to make sure this is fully arranged before hand. If you have any questions feel free to ask. Hope for the best on your journey! You're not alone!

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Replies to "Hi Denise, I recently had spine fusion for my scoliosis. My surgery was done over two..."

No, she is not alone.
In 2008, I, too, had a 2-day surgery, at age 58. Before the surgery, my spine surgeon just wanted to “keep an eye on it;” however, in one year, my curve progressed 11 degrees! At that time, the surgeon said it was time - finally.
Since that time, I’ve had six revision surgeries. Now, I have constant low-back pain - in fact, it’s never gone away, actually. My only relief is when I sit or lie down, but I really don’t want to spend the rest of my life, sitting or lying down!
Mayo declined to see me, which was disappointing, to say the least. Their declination letter said they have no treatment options for me. I suppose all my documentation they received kind of scared them away.
I do, however, have an appointment with the Cleveland Clinic, which is quite far away from my home. To be honest, I feel they just might say the same thing, so am thinking of canceling the appointment. I just might be wasting my time and theirs.