← Return to Osteoporosis and Forteo (teriparatide): What to hear experiences

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@brookebloomingdale

I am simply copying my response here (some what of a novel - sorry) to a similar question re Forteo
I can only share my recent experience. Unfortunately, (praying this is a lesson to all!) I was not given a bone test prior to a rather complicated back surgery. I never healed and only got worse afterwards. The test should clearly have been done based on my risk factors. The end result was so bad that I now have "cages" that have migrated enough to make contact with arotic artery as well as another major vein. No new surgeon wants to risk a revision surgery, demanding that I take Forteo to build up bone enough to even think of a revsion . Feels like being held hostage. So I am now at week six with daily injections. I was so cocky and happy the first two weeka! No side effects. So happy because having vertebrae bone on bone and permanant nerve damage is enough pain! THEN week 3 comes! Every joint is now hurting and I am extremely unstable. Ankles and knees go out without notice and I have had several bad falls. There has been no change to meds except for Forteo. In addition, ALL of my lipid (Cholesterol etc) tests have completely turned upside down! In a matter of those three weeks! The pain keeps me up all night. Pain in places I have never had it, even with severe back issues. How the heck can the top of the foot feel like I was stepped on by an elephant? Shin pain worse than shin splints.
I have had no support medically wise currently, as I have been waiting five months for an ecndocrinologist appointment and with the needed revision surgery on hold I had to simply take it on my own. (After a 4 month insurance approval process), That is a very long way of telling you that, if the life saving surgery I so desperately need was not behing held over my head, there is no way I would have started this Forteo! FYI T score -3.8 and 62 years old. Make sure you find an empathetic physician that can review these side effects honestly with you. I wish you the very best. Again, don't want to freak you out, every body is different, you may well be able to tolerate.

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Replies to "I am simply copying my response here (some what of a novel - sorry) to a..."

I did Tymlos instead- similar drug- but the dose is adjustable so I started low and moved up as my body adjusted. I have fatigue but feel better if I get up and out. It's worth it: I have had excellent gains!

Some people truly cannot tolerate certain meds and my sympathies to anyone who is suffering. I have a hard time with most meds and starting low helps me quite often.