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SFpN UNDER age of 60?

Neuropathy | Last Active: Jun 24, 2023 | Replies (15)

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@fmmartinez58

I belong to an online support group for PHN on FB. There are younger people there. Pain is pain no matter your age. I was 59 when it first started and I am 64 now. I would not wish this condition on my worst enemy. It is life changing.

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Replies to "I belong to an online support group for PHN on FB. There are younger people there...."

@fmmartinez58

59 is still so young, and meanwhile 75 year olds I know still sail and travel the world even though they have had cancer. I'd be interested in learning more about this support group. Thank you for the altruism- and you are so right - pain is pain no matter how old.

This opens my eyes to the notion that I've been angry because I'm not finished building a name for myself, or doing xyz, but I'd imagine that I've been thinking about this all wrong. And regardless of age, we are all still alive, and we know of a time before this disease dominated our lives ... and so, then, there's always something we were ALL looking forward to doing, simply taking care of ourselves and having independence being one thing that comes to mind - and this does not matter, in terms of age. I guess I just feel for folks that have the really debilitating progression before they (we, myself included) have the wisdom to go about handling dealing with compromised health status to such a dramatic degree. While I have had cancer and folks understand that and I've lost folks to cancer regardless of age as we all have, I do struggle with my peers understanding how difficult this is. That said, I know YOU KNOW. And I think a support group would give me that place and space where WE ALL KNOW. I feel so alone in this.

I've said those very same words - this disease is horrible and I would NOT wish it on anyone, not even my worst enemies or those who have wronged me.

Thank you - it is enlightening to reconsider the notion that pain does not discriminate based on age. And, if you don't mind, could you please let me know about this support group - is it easy to find? I deactivated my account but the man who has become my new Patient Navigator and has the same Abbott Proclaim XR biotech for neuropathy and a few other things that I do, from the same surgeons at the same place, where he works, let me know he hosts a support group on FB also, so I figure I'll create an account restricted access so I can participate. Thank you - your message carries wisdom and valuable take-aways that I will keep in mind and heart. I appreciate you very much, and I send you hope and strength.

NMM