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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Hello...
Was diagnosed with PMR May 2022. Have had trouble tapering of Prednisone at 6 and 5mg several times.
And I am still having trouble tampering from 6 to 5. I decided to decrease dosage by 1/2 mg; so I just started on 5 1/2 mg. Currently no pain. If anyone has tried reducing dosage by 1/2 mg....how long did you stay on it???
Last blood test for SED rate was 7 and 30 days before it was 6. Still in range.
Last blood test for C-Reactive Protein was 2.6 and 30 days before it was 1.4; significant increase.
Wondering if your Rheumatologist/PCP has recommended Hydroxychloroquine (Plaquenil) at 200mg to be taken daily? Any thoughts on this????
If so, doctors reasonings??, how did you feel, side effects, and did your CRP number decrease?
Why is my SED rate number in range but I can't get my CRP blood test to be in range.
Has your Rheumatologist and or PCP mentioned increase of CRP number due to stress?
How is much does stress play a role in increased CRP?
Has anyone found that heavy gardening or exercise can increase PMR pain?
Replies to "Hello... Was diagnosed with PMR May 2022. Have had trouble tapering of Prednisone at 6 and..."
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I thought I still had PMR after I had tapered down to 1 mg of prednisone. I went to my rheumatologist fully expecting to be put back on prednisone because I was still stiff and sore. My inflammation markers were lower so he said I was done and should expect to have stiffness off and on for a while longer. It’s been a few months and I have good days and bad days. But I’m off prednisone and am happy with that. I hope to be totally stiffness free soon. (. He said to take it easy - your adrenals could take up to a year to get back to normal)