Just diagnosed with pancreatic NET stage 1

Posted by kt348 @kt348, Oct 17, 2022

I’m a 64 year old woman, I’ve have colon issues for decades among other issues. They found my tumor on a CT scan, I don’t think I have any symptoms because of all my other issues in play. Anyway, I’m devastated! It’s on the tail portion of my pancreas, 1c in size, well sectioned, slow growing. I had biopsy done with scope to confirm cancer. My oncologist surgeon had 2 options, wait 6 months and repeat CT so we had a baseline and check for any changes or surgery to remove it, which the tail of pancreas is removed and also remove spleen, tube running (for temp drainage) out of my nose. 4 immunization shots followed by 2 more. So I opted for waiting the 6 months. I’m so confused and scared it’s going to move to another area. If anyone has had this same issue please message me back with your decision. It’s been a month since I found out and I’m a wreck! Thanks

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

kim1965 | @kim1965 | Apr 6, 2023

In reply to @tomrennie "My Mayo care team never said terminal." + (show)

These type of conversations are not helpful to what the goal of the forum is I believe. We all are here to try to help each other battle NET’s.

Turkey | @tomrennie | Apr 6, 2023

In reply to @kim1965 "These type of conversations are not helpful to what the goal of the forum is I..." + (show)

Not my intent. But I do have a problem when things are misrepresented. I am just trying to learn, so I will ask questions.

Colleen Young, Connect Director | @colleenyoung | Apr 6, 2023

A gentle reminder about the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/#ch-tab-navigation

In particular I'd like to point out guidelines number 2.

2. Remain respectful at all times.
– Exercise tolerance and respect toward other participants whose views may differ from your own.
– Disagreements are fine, but mutual respect is a must.
– Personal attacks against members or health care providers are not acceptable. Such posts will be removed.

There are many terms that people and medical professionals use when discussing stage 4 cancer such as advanced cancer, metastatic, terminal, non-curable, etc.

With today’s treatment advancements, more and more patients live many quality years with metastatic cancer.

That said, I recognize that words matter. In this supportive community, I ask that each member respectfully allow the other to define their cancer in terms that speak their reality.

michellesimpson10 | @michellesimpson10 | May 7, 2023

In reply to @wifey2021 "My husband has (had) a 2.7 tumor in the tail of his pancreas, found incidentally, that..." + (show)

I’m glad he is doing well. Big hugs to you both. It’s very scary. I’m having surgery in the morning for a NET 2 cm in the tail of my pancreas and spleen removal.

michellesimpson10 | @michellesimpson10 | May 7, 2023

We are here to support you, pray for you and send love. It is very scary. I’m newly diagnosed with 2 cm NET in tail of pancreas. I’m having surgery in the morning to remove tail and spleen. From what I have read from other people on here, it is best to find a NET specialist and do what is best for you.
I’ll say prayers for you and follow your journey.

Teresa, Volunteer Mentor | @hopeful33250 | May 7, 2023

In reply to @michellesimpson10 "We are here to support you, pray for you and send love. It is very scary...." + (show)

I'll be thinking about you tomorrow, @michellesimpson10. I hope your surgery goes well tomorrow and that your recovery is uneventful.

Will you post again and let me know how you are progressing?

michellesimpson10 | @michellesimpson10 | May 7, 2023

In reply to @hopeful33250 "I'll be thinking about you tomorrow, @michellesimpson10. I hope your surgery goes well tomorrow and that..." + (show)

Thank you. I will post when I’m able to. I’m just ready to have the surgery and find out what the pathology report shows so I know what my next steps are.
Have an awesome day