← Return to Recently Diagnosed with Nephroptosis (floating kidney). Anyone else?

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@jjb1225

I did want to clear up my mistake here. I was NOT diagnosed with nephroptosis .. I apologize for my memory also.
I did go and look up my records since your descriptions did seem a little "off" from my understanding of my condition.
My condition is called Hydronephrosis ..quite different from yours. Mine is a result of urine backing up into my kidneys causing swelling and "fluid around the kidneys".
I also apologize to the group for messing up this thread too.
Thanks, Margaret

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Replies to "I did want to clear up my mistake here. I was NOT diagnosed with nephroptosis ....."

No worries. What is most important is that you get the correct information for your situation. Possibly you should start a new thread on Hydronephrosis to see if there are others out there in Mayo Connect Land that can share their experiences. That is what I did and I believe it is worth it.

The Floating Kidney is rare and I just kept my fingers crossed - I did not expect more than two or three people to reply - but knowing there are others is a comfort in itself, even if the treatments are different. Most cases go undiagnosed because it often does not cause problems. The cases that do get diagnosed can take years while the patient has renal colic, pain and other symptoms that are non-specific.

Good idea, @jabrown0407

@jjb1225, if you would like to connect with and support others living with Hydronephrosis, check out this discussion:
- Hydronephrosis: Might there be an underlying issue? https://connect.mayoclinic.org/discussion/hydronephrosis/

There are other discussions too. Just use the new improved Search. 🙂