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@cre8ivetait

I have not been officially diagnosed with PMR - still waiting to see an Rheumatologist- in my area appointments are 1.5 years out - I was able to get an appointment the end of this June in a town about 260 miles away.

Im a 50 year old male, started having shoulder pain in February, then maybe a week later both my legs had thigh pain - was at the point of having trouble getting into bed, dressing and getting into my vehicle- went to see my Dr. I don’t think he fully understood the amount of pain or stiffness I was describing and showing him - he did do blood work and my SED rate was 69 - he gave me prednisone 40mg a day for a week - pain wasn’t as bad and I was semi functional- after the week he would not refill my script- within 48 hours I was in full pain and stiffness mode - went back to my Dr. he put me on prednisone again for a week and 75mg of Duloxetine as he thought it was fibromyalgia- after one week I was not given prednisone and continued the Duloxetine with no relief - then I ended up getting real sick the beginning of April - went to a walk in clinic - and gave me prednisone for my “flu” which actually was Covid I found out by doing a home test.

After that prednisone was over my symptoms started to come back 8 hours of stopping prednisone- by the next day I was barely able to get out of bed, needed assistance in the restroom and could not dress myself.

Called my Dr. back and was able to see him that day - after seeing me in that condition he started me on 40 mg of prednisone for 2 weeks and put me on methotrexate 2.5 a week, going up every week until 7.5.

Was feeling really good by week 2, and again he stopped the prednisone- it take 3 days this time before I was fully back in pain and the pain was now in my elbows and neck was extremely stiff on right side.

I was able to get him to give me prednisone but this time he only gave me 20mg a day and continue with the methotrexate

I did start doing PT to help get range of motion back - still in pain with limited motion but not nearly as bad without the prednisone.

Seems like the only thing that takes away my pain and stiffness is 40mg of prednisone - hoping to get some answers in June when I see the Rheumatologist.

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Replies to "I have not been officially diagnosed with PMR - still waiting to see an Rheumatologist- in..."

I hope that your rheumatologist visit gets you on the right track. I was very lucky to get into my initial rheumatologist appointment within about 2 weeks of the flagged blood tests, and my doctor listened to me for about an hour. I don't know if the current treatment will work, but I think it helped me to prepare for the appointment by writing down my "symptom timeline" before the appointment, so that I could tell him everything I saw. Luckily my doctor took the time to listen to everything I had to say. I'm similar age (52) and prior to this had not ever had notable health issues of any kind, so this has turned my life upside down, although I know it could be much worse.