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Anyone have cancer with unknown primary?

Cancer | Last Active: Apr 23 8:48am | Replies (100)

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@rd314

My sister was just diagnosed with carcinoma of unknown primary. She started having symptoms the day after her 35th birthday. It took a month and a half to figure out what was going on (6 ER visits, primary care & pulmonologist). One ER told her she had gallstones, I took her to another the next day because I thought if she’s been in that much pain and sick for that long, her gallbladder should need to be removed quickly. Instead we were told she has a mass on her lung that was very concerning and could be cancer. Two different hospitals have tried to determine the primary with no luck so far. As of right now we know she has a spot on her lung, adrenal gland, thyroid, neck, spine, rib cage and hip bone. She had 2 weeks of radiation to try and help with some pain. She starts chemo Monday. We are also waiting for results from a Tempus test. I’ve been in contact with City of Hope (Cancer Centers of America) and we should be making a trip to them within the next two weeks.

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Replies to "My sister was just diagnosed with carcinoma of unknown primary. She started having symptoms the day..."

So sorry to hear of your sisters illness. I started with lung carcinoid cancer. Had upper lobe of lung removed in 2012. Doctors figured carcinoid was gone and sent me on my way. My pulmonoligist saw me annually to check my lung function and I am on oxygen, but other than that no problem with cancer or so they thought. A PET scan is the only way to really tell what is going on.