12 months free of disease with clear CT scans: What is next?

Posted by lottie60 @lottie60, Mar 29, 2023

My husband has been clear of disease for 12 months with clear CT scans. The cancer disappeared after 12 sessions of chemo which the oncologist described as a miracle. He was diagnosed with stage four, mets to liver, however mets disappeared after 3 chemo sessions, he was not a candidate for surgery.
The CA19 market has been rising over the past 4 months, last result marker of 500 - a further CT and MRI later this month …..Oncologist states she will not act in CA19 marker alone. My husband is active, eating well and maintaining weight and feeling very well - we are a little concerned and wondered if anyone has the same experience
Thanks for any info

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Profile picture for sprinter345 @sprinter345

What chemo did your husband have ? Your post is hopeful.

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12 sessions of folforinox every fortnight. NEDafter 9 but oncologist advised to complete the course to get rid of any lurking gremlins.

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I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox treatments. All clear for 2 years then ca19-9 started to climb. CT showed nothing. Liver enzymes started to climb. Still nothing on CT. Due for bloodwork and CT again in a couple of weeks, so we’ll see. I am feeling ok, but am concerned. So is oncologist. So we wait. He is trying to get a PET scan, but no word yet.

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Profile picture for krfinlayson @krfinlayson

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox treatments. All clear for 2 years then ca19-9 started to climb. CT showed nothing. Liver enzymes started to climb. Still nothing on CT. Due for bloodwork and CT again in a couple of weeks, so we’ll see. I am feeling ok, but am concerned. So is oncologist. So we wait. He is trying to get a PET scan, but no word yet.

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Thanks for sharing your story. Hope the outcome of the scan is favorable

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Profile picture for gardenlady1116 @gardenlady1116

Thanks for sharing your story. Hope the outcome of the scan is favorable

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Like you my markers increased. Had a meet with my oncologist today and bad news. A 19mm tumour has reappeared. Scheduled for 12 folforinox chemo sessions next week. Am i worried.....too right i am. Do i have a positive outlook... for sure. Was blessed with 14 months of NED so will hang on to a repetitive outcome. I do hope 《gardenlady》you have good news. Be strong,Be fearless

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Profile picture for andysi @andysi

Like you my markers increased. Had a meet with my oncologist today and bad news. A 19mm tumour has reappeared. Scheduled for 12 folforinox chemo sessions next week. Am i worried.....too right i am. Do i have a positive outlook... for sure. Was blessed with 14 months of NED so will hang on to a repetitive outcome. I do hope 《gardenlady》you have good news. Be strong,Be fearless

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@andysi, I'm sorry to hear of your bad news, but appreciate your positive outlook.

How is chemo going?

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Profile picture for andysi @andysi

Like you my markers increased. Had a meet with my oncologist today and bad news. A 19mm tumour has reappeared. Scheduled for 12 folforinox chemo sessions next week. Am i worried.....too right i am. Do i have a positive outlook... for sure. Was blessed with 14 months of NED so will hang on to a repetitive outcome. I do hope 《gardenlady》you have good news. Be strong,Be fearless

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Scheduled for surgery June 21st. I have gone from borderline operable to operable.

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Profile picture for gardenlady1116 @gardenlady1116

Scheduled for surgery June 21st. I have gone from borderline operable to operable.

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Garden lady- what was your stage and what was your treatment that now allows you to be operable? thank you. Good luck and God Bless for June 21.

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Profile picture for gardenlady1116 @gardenlady1116

Scheduled for surgery June 21st. I have gone from borderline operable to operable.

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That is great news, @gardenlady1116!

How are you feeling about being ready for surgery? Have you seen the discussions about tips for recovery?

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Profile picture for Colleen Young, Connect Director @colleenyoung

That is great news, @gardenlady1116!

How are you feeling about being ready for surgery? Have you seen the discussions about tips for recovery?

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I am anxious, so many things can happen with surgery. I live alone so I am hopingI will be able to manage by myself soon.

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Your story is so inspirational , I hope your husband is doing better then ever before !
Please can you share the age of your husband when he was diagnosed ?

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