← Return to GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

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@reets70

I’m so relieved to see that others have fatigue too! I also feel very shaky and unsteady on my feet. Interestingly, my rheumatologist started me on 20 mg of prednisone 20 months ago, and tapered me down to 5 now. I know that’s good, but I’m concerned about this shakiness.
I used to be a walker and a golfer, but can no longer do either!

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Replies to "I’m so relieved to see that others have fatigue too! I also feel very shaky and..."

I also feel unsteady when I am having a bout of pmr. I would say I feel a little dizzy instead of shaky. And very fatigued. I just want to lay in bed and watch TV and every chore is an effort. I used to be quite hyperactive and always working around the house and yard. I was never a "sitter". With pmr my visual focus is shaky, now that I think of it. I think I will go and start on some prednisone. Maybe I'll try 5 mg. I used start with 10 and then work down. I'll see how I do on 5 mg. My husband is a family physician and also has a veterinary degree. He went to vet school at Washington State, then to Vietnam where he oversaw the dogs and helped with human surgeries. Then back to the US and medical school. He diagnosed me and leaves it up to me to titrate my prednisone myself. I am an RN from FSU nursing school. I'm 74 and had my initial attack at age 69. I think people should regulate their prednisone personally depending on how they feel.