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How Often Do CT Scans Give False Negatives for MALS?
I have had chronic abdominal pain for 3 years and I've lost about 40 pounds at this point, I'll be hitting 80 in a few months at the rate I've been going. My doctor thought it was MALS and I looked over its symptoms and I checked just about every box (weight loss, nausea, tenderness in the stomach and belly button area, pain from eating or drinking anything, and history of lung pain/burn when exercising hard) , but the CT Scan results came out with me being 100% normal, as did colonoscopy, endoscopy, gastric empty study, and numerous blood tests. However, MALS hits too close to home for me to not ask if it's possible for a CT scan to not pick it up, or if nothing else, an adjacent disorder that I might have instead
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@ath
I’m sorry you were turned down. We hear that Mayo GI is overwhelmed nowadays.
I would try Cleveland Clinic- they are also superb.
I called Cleveland, but was more or less told they do in-person only, even for the preliminaries like medical history/records and even then it'd be a month out, with no guarantees I'd be accepted afterwards. That's not a risk that I can take, but I don't know any other places I could look at for tertiary care though.
@ath -
Most University Medical Centers are tertiary care centers.
Did Cleveland Clinic say that you could be seen for an intake in a month or so? If I were you I would do that while still searching for other places.
Nowadays it is almost impossible to be seen anywhere for specialty care in less than a months time.
Where about do you live? Can your current doctor suggest where you can go?