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Kidney cancer patients: Let's connect and introduce yourself
Kidney Cancer | Last Active: Dec 4 8:23am | Replies (245)Comment receiving replies
Thank you Nancy for such a nice response:). It’s this type of info that’s gives me the most strength! I pray your husband will continue having a positive response from these drugs!
I am currently doing what your husband did with the drugs since mine too has moved to my lungs. It’s only been a month and the drugs are doing a job mentally. I always feel like I’m in a fog.
I just want it to kill the cancer!
I constantly have a metal taste in my mouth and haven’t found a solution. Did this happen to your husband? I could ask you lots of questions. I so appreciate you reaching out.
Koke
Replies to "Thank you Nancy for such a nice response:). It’s this type of info that’s gives me..."
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Koke,
Thank you for responding. My husband never had the metal taste in his mouth but I have read that could be one of the side effects. He did have diarrhea, sores in his mouth, sores/rash on his arms and legs, foggy brain and no appetite. He ended up losing around 50 pounds. Finally with the lack of energy and his thyroid starting to get at low/high levels they took him off the treatment.
The drugs did a mental job on him as well. It seemed to affect his moodiness and his memory? But then again, it could be his age (he will turn 67 this year). I think between hearing you have cancer and wrapping your head around that, on top of the treatments.... well it is a lot to deal with.
Are you doing Keytruda and Lenvima or do they have you on something else? I really hope your cancer reacts to these new drugs and yes, I hope that it kills the cancer. Cancer is so scary but I believe these new drugs seem to offer a lot of hope and promise! I hope you can stay as positive as a person can going through what you are going through and that you have a good support system. That ALWAYS helps. Always hear if you would ever want to discuss anything or have questions. I will answer to the best of my ability.
Always hoping for the best,
Nancy