← Return to Diagnosis of CKD: What are your disease management tips?

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@gingerw

@windyshores Good for you, to get an appointment with a nephrologist. When is it? My suggestion is to sit down and write out the questions you have, and note the symptoms you are experiencing. Don't leave out what might appear to be "things that don't matter", since they just might in the big picture!

Beyond my kidney disease and blood cancer, I was diagnosed with Systemic Lupus way back in 1988. There is no telling how that has affected my system over the decades.

Please let me know how that appointment goes, okay?
Ginger

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Replies to "@windyshores Good for you, to get an appointment with a nephrologist. When is it? My suggestion..."

I am mainly concerned about the rate of decline. And drinking a lot of water didn't do much for the GFR.

I had a lupus diagnosis in 2001. This spring I am very very sun sensitive and get headache, tingly paresthesias, diarrhea, lung and joint pain. Some years are gentler. Going to throw in a rheumatologist too.

Thanks for the response.