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Diagnosis of CKD: What are your disease management tips?

Kidney & Bladder | Last Active: May 6, 2023 | Replies (10)
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@windyshores

I discovered this week that my EGFR has gone from 50/55 to 36 and 42. I got the 41 after drinking a lot of water. My blood pressure runs low. I have a long standing diagnosis of lupus but mainly just get sick in the sun. My blood sugar was kind of high at 156 two hours after a pretty low carb meal (daughter has type 1; I am thin so didn't expect type 2). I have been on Tymlos, a drug that builds bone and can cause kidney stones but should be okay for folks with kidney disease. I made an appointment with a nephrologist. Something funny is going on.

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windyshores | @windyshores | May 6, 2023

ps not saying I have diabetes- but going to start watching it.....concerned about kidney decline in one year

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Ginger, Volunteer Mentor | @gingerw | May 6, 2023

@windyshores Good for you, to get an appointment with a nephrologist. When is it? My suggestion is to sit down and write out the questions you have, and note the symptoms you are experiencing. Don't leave out what might appear to be "things that don't matter", since they just might in the big picture!

Beyond my kidney disease and blood cancer, I was diagnosed with Systemic Lupus way back in 1988. There is no telling how that has affected my system over the decades.

Please let me know how that appointment goes, okay?
Ginger

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