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@phyllisden

@helloitsme, I am in the process of trying to schedule a scan (Gallium 68) as my last one was 14 months ago. It’s a bit stressful as it’s been so long but I’m just trying to focus on the fact I feel good (an hour at the gym today, 3 miles on the treadmill yesterday). Fingers crossed on this.
As for moving doctors, I mailed a letter to my former doctor today saying I was notifying him I would no longer be seeking treatment there, thanked him for his help and support over the last 4 years, and that I know he and the staff have very challenging jobs. Short and to the point and I felt better for having done it. No reason to go into my grievances, but just to move on.
So, I know there’s likely going to be a next step in my treatment, just don’t know yet what it’ll be. It’ll be a new “challenge”. But I viewed hitting 3 miles on the treadmill a challenge, and I’ve met it. Hum, guess I need to set a new challenge there.
Keep us informed please.

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Replies to "@helloitsme, I am in the process of trying to schedule a scan (Gallium 68) as my..."

It sounds like you're taking really good care of yourself and you must be in great shape because of it! Congrats on meeting your goals!
Good luck with your new doctor...I hope your new scan with show great results. Please keep me informed, OK?
I will have my first appointment at Mayo with Dr. Sonbol on May 26 so I will know more about my disease, treatment, etc. after that. I will keep you informed. Thanks for your note, and keep up the good work!