Sitz Marker Study for Slow Transit Constipation

I totally understand that the demand exceeds the requests. My issue was with how the entire process was handled. At my initial call I was directed to mail records, drs reports, tests, etc. It took me a week to assemble and $20 to mail. Two days after I sent, I already got the denial letter that was dated 3 days after I had my initial phone call. When I called, I was told the letter was “auto sent” and I should not have received. They hadn’t even gotten my packet yet. When I hung up, I went on the portal, and right there, all my tests had been uploaded. Two lies. She said to call back in a week or two so I did. So sorry we can’t offer you an apt. I asked why I hadn’t been notified. You were. We sent you a letter weeks ago. I thought that was an error? No. So why was I denied? Let me check. Oh I see here they feel they have nothing here new to offer that your dr at Cleveland Clinic hasn’t tried. How did they make that decision when they didn’t have my records? He isn’t even my current dr and I now have a different diagnosis. And, you definitely have a program there to help me or I wouldn’t be spending all this money to come there from Pennsylvania!
So, if Mayo had no intention of giving me an apt, at least be honest. Don’t promote programs like the Bowel Evacuation Clinic. Tell me right up front and save me the $20 for records no one ever looked at. And mostly, don’t hold out false hope.
Yes, my colo-rectal surgeon is ordering the Sitz Marker study to determine what type of colectomy I’ll need. Mayo was my last hope to avoid removing my colon.

I am sorry You are going through all this suffering and for the way your situation was handled!Mayo should reevaluate this and offer concrete options for your treatment !

Thank you for the further explanation. I understand better now.
If you wish, you may consider reaching out to the Office of Patient Experience:

Mayo Clinic Office of Patient Experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu
https://www.mayoclinic.org/about-mayo-clinic/patient-experience

I tried to do that when this happened, but all I could find on the site was how to recognize staff for caring treatments or good experiences, Nowhere to file complaints.

I totally understand that the demand exceeds the requests. My issue was with how the entire process was handled. At my initial call I was directed to mail records, drs reports, tests, etc. It took me a week to assemble and $20 to mail. Two days after I sent, I already got the denial letter that was dated 3 days after I had my initial phone call. When I called, I was told the letter was “auto sent” and I should not have received. They hadn’t even gotten my packet yet. When I hung up, I went on the portal, and right there, all my tests had been uploaded. Two lies. She said to call back in a week or two so I did. So sorry we can’t offer you an apt. I asked why I hadn’t been notified. You were. We sent you a letter weeks ago. I thought that was an error? No. So why was I denied? Let me check. Oh I see here they feel they have nothing here new to offer that your dr at Cleveland Clinic hasn’t tried. How did they make that decision when they didn’t have my records? He isn’t even my current dr and I now have a different diagnosis. And, you definitely have a program there to help me or I wouldn’t be spending all this money to come there from Pennsylvania!
So, if Mayo had no intention of giving me an apt, at least be honest. Don’t promote programs like the Bowel Evacuation Clinic. Tell me right up front and save me the $20 for records no one ever looked at. And mostly, don’t hold out false hope.
Yes, my colo-rectal surgeon is ordering the Sitz Marker study to determine what type of colectomy I’ll need. Mayo was my last hope to avoid removing my colon.

Good luck. My 36 year old son had a total colectomy in Boston - excellent surgeon and done laparoscopically. The surgeon opted not to do a retopexy even tho an MR decfecography showed a “severe descent of posterior compartment”. He is not able to pass solid stool because of this but the Dr doesn’t want to do rectopexy now. It would be an admission I think thst it should have been done. He told us to go get a second opinion somewhere else. We are doing thst but finding the best surgeon and in a timely way to get an appointment is difficult. Make sure you have an MR Defecagraphy and a small bowel follow through to rule out everything that could be anatomically wrong. My son had his colectomy done laparoscopically and the actual surgery went very well. Good luck

Hi, I, too, have had that test but it came out, was diagnosed with IBSC, early satiety, gastritis,... etc. However, I can't have a bowel movement unless I take Linzess (which I don't think helps) , M.O.M., suppositories, which help gets things moving, magnesium Citrate, senna tablets. I alternate them with Linzess.
I wouldn't go for days without doing that. I can't believe you don't go for a month! How terrible that is for you. I'm so sorry. I've gone to ER, and been given soap suds enemas, wow, wish I could do that every day!
Hope this helps., Deb