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Anyone else have cervical dystonia?

Spine Health | Last Active: Aug 3, 2023 | Replies (11)

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@shenaaz

I HAVE CERVICAL DYSTONIA. THE PAIN IS UNBEARABLE. IS THERE ANYONE OUT THERE WITH THE SAME SITUATION.

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Replies to "I HAVE CERVICAL DYSTONIA. THE PAIN IS UNBEARABLE. IS THERE ANYONE OUT THERE WITH THE SAME..."

I realize this post is from awhile ago. My mom is 82 with cervical dystonia and also has unbearable pain. No doctor or treatment has helped. Looking for ideas for pain management.

Hello, I was diagnosed with a Movement Disorder/Cervical Dystonia after I was rear-ended while parked, 10 months after I was side impacted by a Ford 150 super duty truck. I get Botox injections every 3 months. The pain is unbearable! No one could understand while the swelling & protruding of tendon/muscles were protruding when I would just turn my neck a little. My neck gets stuck. The pain management thought I had a Supraclavicular Fossa Mass/tumors, even though, it only swelled when I moved and have spasms. The first diagnosis after the ultrasound was Myositis of the right side. That's because the right side was the only side swelling at that moment. It's the weirdest thing & very painful!

Me!!!
Have you found anything to help. I live my life in pain 24/7