I realize this post is from awhile ago. My mom is 82 with cervical dystonia and also has unbearable pain. No doctor or treatment has helped. Looking for ideas for pain management.

Hello, I was diagnosed with a Movement Disorder/Cervical Dystonia after I was rear-ended while parked, 10 months after I was side impacted by a Ford 150 super duty truck. I get Botox injections every 3 months. The pain is unbearable! No one could understand while the swelling & protruding of tendon/muscles were protruding when I would just turn my neck a little. My neck gets stuck. The pain management thought I had a Supraclavicular Fossa Mass/tumors, even though, it only swelled when I moved and have spasms. The first diagnosis after the ultrasound was Myositis of the right side. That's because the right side was the only side swelling at that moment. It's the weirdest thing & very painful!

Me!!!
Have you found anything to help. I live my life in pain 24/7

I have cervical dystonia/spasmodic torticullis, and am in pain but I have a high pain tolerance and just got used to it over the years. I get Botox every three months which sometimes gels and sometimes not. My first treatment was physical therapy with a specialist in this. I worked hard and it did help with the range of motion and the severity of spasms. Then the Botox while still doing PT, but still kind of the same results. I have done acupuncture as well (didn’t do much for this issue but helped with neuropathy). I then requested a chiropractor so could not initially do much in the way of adjustments because my neck, shoulder, and upper back muscles were solid as a rock. He used a TEMS machine and some massage with a power tool (that’s what it felt like at least), and it helped (with the pain) a little more each visit. Then I paid out of pocket for a sports massage. The therapist worked directly with my chiropractor. The first visit was all about him feeling where the issues are, but it was still like a massage. That did wonders for my pain for a few days. I don’t know if it was the path of treatment I took, but that massage was great because I didn’t realize how bad the chronic pain was until I got a bit of relief. However it didn’t stop my torticullis, sadly. Long reply, but maybe someone can relate or got a good suggestion from this?