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Airway clearance and how I feel throughout the day
MAC & Bronchiectasis | Last Active: Jun 5, 2023 | Replies (55)Comment receiving replies
Dear Ling, I do my best but it is not easy! It is rather hard to answer the question about infections in my case. I believe that I live with some level of chronic infection all the time. But it is a matter of degree. I have the mucoid form of Pseudomonas and normally that would be treated ongoing since it is not considered something you can get rid of. Treatments with antibiotics have only happened twice in 20 years believe it or not (LONG story). First time worked and second time did nothing. Currently struggle with bad GI issues and Kidney so getting by with my nebulizing and "remedies". Treatment with the right antibiotic would help but these other co morbidities are a barrier. Each time I use the Aerobika I do 15 breaths. And I do that approx 13 times. You would not need to do so much!! Probably no one does this much but me! But once I am done I have expelled almost 3 ounces each day.
Replies to "Dear Ling, I do my best but it is not easy! It is rather hard to..."
Dear @irenea8
I hope you have recovered from your GI and kidney problems. Feel better!!! I remember in one of your previous notes that you mentioned you had bronchiectasis for more than 20 years. And for 20 years you did not even use a flutter or nebulizing, only used your own breathing techniques. But you managed your condition well enough to avoid being infected by mycobacterium. I often think about you and how you successfully manage the condition for over 20 years. I feel so lucky to have you here in the group and generously share your experiences so others can benefit from. My pulmonologist recommended me to use an inhaler, especially in the spring time for a couple of months (ADVIRE) to prevent airway inflammation which will make bronchiectasis worse. I don't think I have asthma. I do dream to keep my bronchiectasis condition stable, but I am hesitant to use an inhaler. I guess I want to know if you have to use anything or an inhaler to avoid airways being inflated from time to time? And I guess I want to know what would be a proper maintenance path for me now. Like you, I don't think I have MAC even though I have not tested it yet. Fluttering and nebulizing would be enough? My pulmonologist has not prescribed me with nebulizing stuff yet. He asked me to use Albuterol before fluttering. So far it is working for me. I do use the inhaler sometimes, since I am still trying to find what I should minimally do to keep me safe from infections and keep my bronchiectasis condition stable. You also mentioned that you always have some kind of chronic infection, did the infection make your bronchiectasis worse? Like always, your experience will be greatly appreciated.
Ling
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@irenea8,
Thank you so much for your detailed explanation. I learned so much from you. I am very sorry to hear about your chronic infection, GI and kidney issues. I hope you are managing the conditions well. And get better soon. Take good care of yourself, it seems you are.
Best of luck!
Ling