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Is everyone here diagnosed with PMR seeing a rheumatologist?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 20, 2023 | Replies (103)Comment receiving replies
I go to a rheumatologist. This Mayo support group has really helped me taper. I purposely did it slowly. I have finally got off prednisone after exactly one year. I often went down by reducing only 1/2 mg at a time especially when I was down to 5 and under. Do not rush a taper. I also had to figure out what was PMR and what was other old age health issues. I had steroid shots in my lower back and a steroid shot in my ankle for tarsal tunnel syndrome. I was also diagnosed with TMJ and got a mouthgard. I had numerous tests which helped decide if my discomfort was actually PMR or something else. It was a terrible year, but seeing some light at the end if the tunnel now.
Replies to "I go to a rheumatologist. This Mayo support group has really helped me taper. I purposely..."
Loyal...
Also, when you were taking 5mg and then 4.50mg....how many days each dosage?
Going forward when you reduced only by 1/2 mg at a time...how many days would you be on that particular dosage before reducing again by 1/2mg????
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Hi Loyal....
Wondering what dosage did you start prednisone? Also, when you started the prednisone what levels were your SED and CRP bloodwork at? How often do you do blood work?
I am a female and I have a male friend that was off of prednisone at 14 months of treatment.
His SED rate was at 100 and not sure what his CRP was. His starting dose for prednisone was 40mg. He mentioned to me that he did not change his diet. I changed my diet and was eating salmon almost daily and now I have since stopped since I think it is adding too much fat to my diet and also farmed salmon is not good to eat. Sometimes I can get wild salmon but for the time being I am going to stop eating salmon to see if my blood levels improve. I am hoping one day I can say...I am finally off of prednisone. Wondering do you live on the east coast or west coast? Any chance from California? Congratulations!!!