Hiatal Hernia. What helps?

Posted by betterb4 @betterb4, Feb 13, 2017

I was just diagnosed with a small hiatal hernia but I'm feeling pretty miserable. I was a perfectly healthy person and this all started a couple months ago. It started with a feeling of a "lump" at the bottom of my esophagus (or top of my stomach). Sometimes I had a burning feeling in my esophagus. I mentioned it with my gastroenterologist before a routine colonoscopy; she pretty much dismissed it but immediately put me on Prilosec in the morning and Zantac.It really doesn't help very much. before bed. I had and EGD and she diagnosed and irritated esophagus and stomach and a small hiatal hernia.
I have now given up coffee, wine, chocolate, beef, tomatoes and eating after dinner (everyday the list grows.) We have propped our bed at an angle. I am afraid to eat. She insists that the hernia is not causing this, but it must be. I'm in my 50's, perfect weight and have never even had heartburn. If this doesn't improve soon, I am thinking of going to Mayo for a full evaluation. I can't live this way and I DO NOT want to be on medicine the rest of my life.

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Profile picture for mjdavidson @mjdavidson

How normal is it to have a hiatal hernia where 75% of the stomach and intestines are inside your chest cavity causing left lung to collapse ? What are the dangers if any and my chances for full recovery. Surgery took just over 6 hours.

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I did not know I had a hiatal hernia as I had no pain , BUT have had a sometimes severe gagging cough for several years !! Has anyone had a similar problem ?? I am wanting to get the surgery that will hopefully STOP the cough especially after eating

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Profile picture for mjdavidson @mjdavidson

How normal is it to have a hiatal hernia where 75% of the stomach and intestines are inside your chest cavity causing left lung to collapse ? What are the dangers if any and my chances for full recovery. Surgery took just over 6 hours.

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Hello! I had a hernia and even though I didn't have cough, I always felt something stuck in my throat and was constantly clearing my throat, my doctor said it was gerd and hernia, he performed a nissen fundoplication surgery and hernia repair, and I don't have that anymore 🙏🏻🙏🏻, however you really need to do a good research for the best doctor since the success of the surgery depends on a doctor with a LOT of experience. Good luck!

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Profile picture for Kelly, Alumna Mentor @kdubois

Having been through this, I would get a second opinion from a different GI doctor. Mayo told me to sleep upright, stop eating for the day at least three hours before bedtime, and to avoid certain foods: greasy foods, spicy foods, peppermint, and more.

Your inclination to avoid meds long-term is spot-on! I had a 4 cm hiatal hernia and GERD issues for years, and the sphincter between my stomach and esophagus was failing. My home doctors treated me with Nexium and it's generic equivalents for years. Twelve years later, and getting sicker and sicker, in September 2015 I took myself to Mayo and they figured out that I genetically don't properly metabolize these medications, which is the reason why I was getting sicker and sicker. Thing is, even if you do properly-metabolize these meds, these meds themselves inhibit the enzyme system that metabolizes these medications, which means that people on these meds long-term will slowly develop symptoms to the medication inhibition. (Both Prilosec and Zantac are also inhibitors.) Unfortunately, the majority of doctors don't know about it.

So solve this problem for me, last October Mayo performed a Nissen Fundoplication surgery on me to fix the hernia and GERD issue. No more meds for me!

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I am so relieved to hear you had a good outcome from your surgery at MAYO. Can you tell me your surgeon who performed the hernia surgery at MAYO.
I really would appreciate it. Thank you. So happy to hear you no longer take the acid reducing meds. Take care.

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<p>Diagnosed with paraesophageal hernia</p><p>This is first post. I was diagnosed with 5 cm Hill grade 4- esophagus wide open with an endoscopy a few months ago. I live in eastern CT and was told by my primary care physician to go to a thoracic surgeon. I have hadGERD for yrs and have been on every prescription PPI there is since 2010 , but my blood work came back with a hemoglobin of 5. 2 blood transfusions later it is 12. I haven't even started any other tests. I did not like the GI department that I started with (small local hospital). 2weeks ago I started vomitting every time I ate small bites of food and drank normal amount of water. I have dropped so much weight that nothing fits (6 dress sizes). The biggest problem is finding a surgeon. The first 6 calls offered nothing until Dec. or Jan. I finally contacted chief of thoracic surgery. They didn't give me a date but connected me with Dr's PA. last week. She promised an appointment in 7-14 days so my fingers are crossed. Any information from a PEH patient or a relative of one would help. Thanks for reading. Have a safe holiday.</p>

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Profile picture for phillygirl67 @phillygirl67

<p>Diagnosed with paraesophageal hernia</p><p>This is first post. I was diagnosed with 5 cm Hill grade 4- esophagus wide open with an endoscopy a few months ago. I live in eastern CT and was told by my primary care physician to go to a thoracic surgeon. I have hadGERD for yrs and have been on every prescription PPI there is since 2010 , but my blood work came back with a hemoglobin of 5. 2 blood transfusions later it is 12. I haven't even started any other tests. I did not like the GI department that I started with (small local hospital). 2weeks ago I started vomitting every time I ate small bites of food and drank normal amount of water. I have dropped so much weight that nothing fits (6 dress sizes). The biggest problem is finding a surgeon. The first 6 calls offered nothing until Dec. or Jan. I finally contacted chief of thoracic surgery. They didn't give me a date but connected me with Dr's PA. last week. She promised an appointment in 7-14 days so my fingers are crossed. Any information from a PEH patient or a relative of one would help. Thanks for reading. Have a safe holiday.</p>

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Thank you! I know a PEH is only approx. 5% of American population so I do not expect huge replies. I will take a hug any day!

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Profile picture for phillygirl67 @phillygirl67

Thank you! I know a PEH is only approx. 5% of American population so I do not expect huge replies. I will take a hug any day!

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I know how you feel! I don’t have your problem. Mine is undiagnosed. God bless! E

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Profile picture for phillygirl67 @phillygirl67

<p>Diagnosed with paraesophageal hernia</p><p>This is first post. I was diagnosed with 5 cm Hill grade 4- esophagus wide open with an endoscopy a few months ago. I live in eastern CT and was told by my primary care physician to go to a thoracic surgeon. I have hadGERD for yrs and have been on every prescription PPI there is since 2010 , but my blood work came back with a hemoglobin of 5. 2 blood transfusions later it is 12. I haven't even started any other tests. I did not like the GI department that I started with (small local hospital). 2weeks ago I started vomitting every time I ate small bites of food and drank normal amount of water. I have dropped so much weight that nothing fits (6 dress sizes). The biggest problem is finding a surgeon. The first 6 calls offered nothing until Dec. or Jan. I finally contacted chief of thoracic surgery. They didn't give me a date but connected me with Dr's PA. last week. She promised an appointment in 7-14 days so my fingers are crossed. Any information from a PEH patient or a relative of one would help. Thanks for reading. Have a safe holiday.</p>

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Thankk you! Hope they get your problem figured out! Feel better!

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Profile picture for phillygirl67 @phillygirl67

<p>Diagnosed with paraesophageal hernia</p><p>This is first post. I was diagnosed with 5 cm Hill grade 4- esophagus wide open with an endoscopy a few months ago. I live in eastern CT and was told by my primary care physician to go to a thoracic surgeon. I have hadGERD for yrs and have been on every prescription PPI there is since 2010 , but my blood work came back with a hemoglobin of 5. 2 blood transfusions later it is 12. I haven't even started any other tests. I did not like the GI department that I started with (small local hospital). 2weeks ago I started vomitting every time I ate small bites of food and drank normal amount of water. I have dropped so much weight that nothing fits (6 dress sizes). The biggest problem is finding a surgeon. The first 6 calls offered nothing until Dec. or Jan. I finally contacted chief of thoracic surgery. They didn't give me a date but connected me with Dr's PA. last week. She promised an appointment in 7-14 days so my fingers are crossed. Any information from a PEH patient or a relative of one would help. Thanks for reading. Have a safe holiday.</p>

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Hi @phillygirl67, a paraesophageal hernia can also be referred to as a hiatal hernia. For that reason, I moved your messages to this existing, active discussion where you can connect with many members.

- Hiatal Hernia. What helps?
https://connect.mayoclinic.org/discussion/hiatal-hernia-what-helps-surgery-or-no/
Also see these additional hiatal hernia discussions: https://connect.mayoclinic.org/search/discussions/?search=Hiatal+Hernia

Welcome!

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @phillygirl67, a paraesophageal hernia can also be referred to as a hiatal hernia. For that reason, I moved your messages to this existing, active discussion where you can connect with many members.

- Hiatal Hernia. What helps?
https://connect.mayoclinic.org/discussion/hiatal-hernia-what-helps-surgery-or-no/
Also see these additional hiatal hernia discussions: https://connect.mayoclinic.org/search/discussions/?search=Hiatal+Hernia

Welcome!

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Thanks so much! I have been feeling that no one else was dealing with PEH!

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Profile picture for mjdavidson @mjdavidson

How normal is it to have a hiatal hernia where 75% of the stomach and intestines are inside your chest cavity causing left lung to collapse ? What are the dangers if any and my chances for full recovery. Surgery took just over 6 hours.

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@fourof5zs I read your story on your blog. Oh my gosh!

I am having breathing and heart problems after eating, a feeling of fullness- so much worse due to spinal fractures that shortened my spine. Lifting is also setting things off and it feels as if something has moved up in my chest, as if my diaphragm moved up. Even tai chi has done this, from reaching.

I just ate half a sandwich. The worst. Bread, in fact, is the worst, and largish anything like meat or fruit.

I am going to start cutting things up, eating slowly and frequently in small amounts. I use a lot of Gas-X and Tums.

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