Hi Jackie and welcome. I joined recently, like you, to find out if other people have, my kind of cancer in their colon with a huge tumor in the liver. I was diagnosed early this year and have had chemo for several months and the tumor is not shrinking. They're going to try the SIR-Spheres procedure on me in 2 weeks. This puts radiation microspheres directly in my liver tumor and it is said that it will shrink the tumor in a few months small enough that a surgeon should be able to resect it. I know my situation is not at all like yours, but just thought I'd mention that this is a great site and nice people here. Good luck to you.

Thank u so much! I hope everything goes well for u to. My thoughts and prayers r with u<br />
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Hey Jackie~
Although I'm not "exactly" like you....no two brain tumor patients really are, I do have some similarities. I am a 16 year survivor of a very rare brain tumor called an Ansplastic PXA. I have also had 5 surgeries, 3 different chemotherapies, standard radiation and most recently proton beam radiation too. I was not a child through all of this but experience the fatigue and some long term side effects of treatments. The best advice I can give is to really stay as active as you can despite the side effects...even if that means just doing a short activity each day. I learned at Mayo Clinic that simply practicing daily meditation or doing yoga can improve fatigue. Keep making plans and having things to look forward too! Most importantly...be good to yourself!! It's ok to feel bad about what has happened to you sometimes, but just don't allow yourself to get stuck there! If you have the opportunity to join a local brain tumor support group I would highly suggest it. You are not alone!!!