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Has anyone been diagnosed with Abdominal Wall Pain?
Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett's test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?
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So Jeff if I understand your posts: trigger point injections did not work but your laparoscopic surgery did? Liz
Hi Liz, The first trigger point worked amazing but only lasted a day or two. The next few shots were ineffective but the first shotit indicated that I had ACNES.
Jeff
Thanks. I am definitely look into booking with Thomas Gillespie. Liz
Hi Jeff. I am having a hard time reaching Dr Eric Boyd. Can you send me his contact info. I reached Dr Gillespie’s office and they won’t see me unless I have been diagnosed with a hernia. Does that seem right to you. I am having such a hard time finding a doctor who can diagnosis my stomach pain (which I think is CAWP). Liz
Hi Liz,
Dr Gillespie requires that you have been diagnosed with ACNES and that means you need to find a physician who will trigger point your pain area. Then when diagnosed with ACNES Dr Gillespie's office will schedule a consultation.
Jeff Groudan
Dr Boyd no longer practices where I saw him. Many doctors or anesthesiologists do trigger points.
Wish I could find one. Liz
Have you tried calling pain management facilities? If you'd like to discuss email me at jgroudan@cox.net to discuss further.
Jeff
Hi my boyfriend has something similar. He’s ongoing ten years though and has been medically released from the army due to this. He can’t work. Since I’ve been with him I’ve personally gone to so many doctors appts with him from his primary to gi to psychiatrist and he’s gone to the ER with me 6 times in the last year. He’s been told he has a hernia but have never said let’s do something about it. He can barely eat, everything makes him either have excruciating pain or immediately throw up. It’s so awful to see and I can’t stand to see him suffer anymore. He’ll be perfectly fine and I’ll think he’s ok and then he’s dying cause he ate some soup. He’s a veteran and trying to get a referral out is so dang hard for no reason. His only relief is a burning hot tub or hot pack but he made it so hot this last time that he kept burning his back ( not even noticing cause the stomach pain) so his back is basically one big scab now. He’s always told he has cyclical vomiting syndrome or hypermesis from smoking ( he only smokes felts to relieve the pain!) it makes me so mad. His gi didn’t think he has cyclical and the next step is hopefully a pill cam 😢 where can we get pain medication? Nobody wants to give him anything to help!
So grateful for the information I’ve received in these chats. After two long years of daily pain, I’m scheduled for surgery next week for a neurectomy. I am so excited to be rid of this!!
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