← Return to Just diagnosed: Metastatic NETs. Treatment?

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@mimmy

Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in my liver. Like you, also inoperable. After the PET, the net started in my lung and also metastasized to my lymph glands in my chest and under my arm pit. I have been on Lanreotide for a year. I did have some stomach pains and diarrhea and tired in the beginning. Now, I am tired and the worst part is the needle injection. It doesn't take long. About 10 minutes. Also the medicine is refrigerated and needs to get to room temperature before it is injected. Everyone is different. I’ll keep the couple of days of being uncomfortable. Also, I had and still have no symptoms of being sick. To me it’s unbelievable that I didn’t have any signs. I did have hemangiomas that I had MRI’s for and they finally showed up as Cancer last year. Good luck to you. Lanreotide is very tolerable. So far it’s is keeping the cancer contained and some spots have decreased in size.

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Replies to "Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in..."

How often do you get Lanreotide?