← Return to Anyone had a successful experience w/ Mayo Pain Rehabilitation Center?

Discussion
Comment receiving replies
Profile picture for Rachel, Volunteer Mentor @rwinney

That's great news Samson. Good for you! From what you describe you've been through, you sound like a probable candidate for the PRC. FYI - I used to have that same list, in a spiral notebook, and kept adding to it until one day I said, this is enough, if I don't make change, change is never going to happen.

A few signs to know you are ready for Mayo's 3 week Pain Rehabilitation program:

1. treatments are faltering and becoming less effective
2. emotional distress
3. physical deconditioning with potential for pushing and crashing

Here's a link to the pain rehab center detailing the program and offering all 3 locations for you to contact:

- Mayo Pain Rehabilitation Center - Overview -
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
The staff at Mayo is extremely helpful. They will answer your insurance questions and any and all concerns.

I think the following discussion about the PRC will be helpful for you to scroll through from the beginning and find helpful info and insight:

- Mayo Pain Rehab Program - Signing Off and My Comeback Afterwards:
- https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/

As @tallyteresa mentioned earlier, the PRC gave her her life back. I second that statement, and I bet @ldb would, too. Here is proof of that in his own words from the thread -Mayo Clinic Pain Rehab Center (PRC) - What's Your Experience?
- https://connect.mayoclinic.org/comment/852488/

Samson, you will have support from Connect and a wealth of knowledge and experience. I encourage you to self-advocate and try. I know it's scary, but you owe it to yourself to at least see if it can happen. Will you keep me posted on your progress?

Jump to this post


Replies to "That's great news Samson. Good for you! From what you describe you've been through, you sound..."

Hi Rachel,

I live in North Idaho, so I am not close to any of the centers. I have a surgery scheduled at Mayo Rochester and would like to consult with a physician who is knowledgeable about Central Sensitivity Syndrome so that I can make sure my surgeon takes steps to minimize chance of a flare up. Because I am not technically a Mayo patient until I show up for the surgery, the Mayo staff are not willing to discuss my other diagnoses and how they will affect surgery until I get there. As you can imagine I don't want to travel 20 hours to find out IF they will be able to accommodate my other challenges. So my question for you is, do you happen to know of a list somewhere of other practitioners in the country who work with people who graduate from the Mayo pain program? I cannot find anyone near me who knows anything about CSS, but I"m hoping I could do telehealth or drive less than 20 hours to get some advice for the surgery. I'm looking for help in figuring out what kind of anesthesia, how the incision itself might affect my nervous system, etc.

Thank you for any help you can give!

Coppertop