← Return to Recently Diagnosed with Nephroptosis (floating kidney). Anyone else?

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@jjb1225

Last May I started with a severe UTI that could not be cleared up for several months. The infection would almost clear up, then begin again. In August my primary doctor ordered ultrasound and then I was diagnosed with nephroptosis in both kidneys. I really had serious lower back pain during these months also. I was lucky enough to get with a Urologist in September. He ordered another ultrasound and MRI. He treated me with antibiotics again and the infection came right back. Next he put me on low dose antibiotics for 3 months. In a couple of weeks it will be time for another ultrasound and check up. After the first month of antibiotics, I began to really improve. I have had 2 months of virtually no pain with incontinence and it has been wonderful also to not have the run to the bathroom all day long and night too.
I have a long history of UTI's. I am now 75 and suffered for so many years. I do not know what will happen next, but I do expect improvement on next ultrasound. Also, I am not holding fluid like before. and when I pee I come close to emptying my bladder. Another Miracle !!
The inability to empty my bladder is apparently why I developed nephroptosis... I do not know what will happen when I get through with this 3 month antibiotic treatment--but I have my hopes my life will improve for my future.
This is such a painful condition to live with. I hope all of you will have a better future too.

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Replies to "Last May I started with a severe UTI that could not be cleared up for several..."

@jjb1225 My understanding is that nephroptosis is a congenital condition you are born with and the "cause" is truly unknow. My searches of Dr Goggle assured me that they really don't know for sure and that little research is done on nephroptosis because it is rare and in most cases does not cause a problem.